Links to other Disfigurement resources

• Let's Face It, the network for the facially - different
• Selves and Self-Image Selves and Self-Images From: Taking Time: Support For People With Cancer And The People Who Care About Them
• Internet Resources for Support Links to links.....
• The Burns Support Group Database as its name implies.
• Emotional Support Resources This site seems to have disappeared, If anyone knows its whereabouts please let me know as it had some good Internet Resources for Physical Loss, Chronic Illness, and Bereavement - Including
  • General Emotional Support Resources,
  • Physical Loss Resources (including General Disability Resources, Amputation, Blindness, Deafness, Facial Disfigurement, Organ Transplants, Traumatic Brain Injury)
  • Chronic Illness Resources (General Chronic Illness Resources, AIDS/HIV, Alzheimer's Disease, Arthritis, Autism, Autoimmune Disorders, Brain Tumors, Breast Cancer, Cancer, Cerebral Palsy, CFS, Crohn's Disease, Cystic Fibrosis, Diabetes, Down's Syndrome, Endometriosis, Epilepsy, Fibromyalgia, Hepatitis, Multiple Sclerosis, Ovarian Cancer, Parkinson's, Polio, Prostate Cancer, Spina Bifida, Stroke, Trigeminal Neuralgia)
• Mental Health Net - Self-help Resources Index Comprehensive guide to online resources in self-help
• Mental Health Net - Self-help Disfigurement Resources The Disfigurement link from the above resource
• Children's Craniofacial Association (CCA)You now have to sign on at the home page, then use the search engine to find this group
  
  Information for:
  • affected individuals
  • families of affected individuals
  • the public or media
  • professionals (e.g., clinicians, teachers)
  Support and referral:
  • matching individuals/families
  • medical referrals
  Training for:
  • speakers
  • advocacy
  Financial assistance:
  • medical care or transportation
  • free medical clinics
• Alliance of Genetic Support Groups Directory Categorized alphabetically by group followed by keywords
• Reading References for Orthodontists. This reading list includes some papersof historical as well as scientific interest which will give the orthodontist a broad perspective of the changing world of orthodontic theory and practice.
• Health Foundations Course: Burns Another site that seemd to have disappeared - shame really as it had lots of detail about the physiological impact of burns.
• Healthlink USA designed to be easy to use for people who are searching the internet for information on a wide range of specific health topics,including Skin Diseases. Links to sites which discuss treatment, prevention, support groups, e mail lists, message boards, risk factors, statistics, research and more are included.
• Positive Image A support network for people suffering from a disfigurement, and for their families and friends. A somewhat minimalist web-site.
• Films featuring disfigurement Some films that deal with disability - not always in a sympathetic way!.
• Finally a very personal one - the disease this web author suffers from - Cherubism, a definition of which is given on OMIM. A picture gallery is available here

Last updated February 2003.
©Copyright Jon Rouse February 2003