Lupus UK is the only registered charity supporting sufferers of the illness Systemic Lupus Erythematosus in the United Kingdom. It has 27 regional groups. The charity supports those who suffer with the autoimmune disease 'systemic lupus erythematosus'. It arranges social and educational meetings and fundraises for research and welfare support. Advice is given to members and those seeking diagnosis.
They are a self-help group, run by volunteers of whom the majority have Lupus, and hope to use their own experiences of the illness to assist those newly diagnosed in understanding their condition, and to provide support to those with established disease.
Their aims are to:
They have a network of support groups and contacts throughout Great Britain and Northern Ireland who offer an empathetic listening ear to any problems the Lupus sufferer may be facing.
- Support and help all Lupus sufferers.
- Aid communication between members and the medical personnel involved in their care.
- Give practical help.
- Promote awareness of Lupus, by gathering and publishing information on all aspects of the disease, for members of the public and all branches of the medical profession.
- To raise funds to help sufferers, to finance research projects, and to work with organisations to promote the aims of Lupus UK.
Membership of Lupus UK is open to all sufferers of:
The Annual Subscription is £6 per year which runs from 1st January to 31st December.
- Systemic Lupus Erythematosus
- Discoid Lupus Erythematosus
- Mixed Connective Tissue Disease and
- To all others wishing to help with the work of Lupus UK.
On joining, members are automatically enrolled in their Regional Support Group and are kept informed of activities which include social and educational meetings, and usually a local newsletter.
Members receive a copy of the national newsletter, News and Views, three times a year, and have an opportunity to acquire books and leaflets on Lupus through Head Office, who can also supply posters and publicity material.
Membership facilitates receiving information on all aspects of the disease, provides opportunity to fundraise for the work of Lupus UK and gives the chance of financial help in cases of need.
St James House,
Essex RM1 3NH.
Lupus uk have two web sites:
Please read this
Last updated September 1999
Comments and corrections can be emailed to Jon Rouse.
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