The Neurofibromatosis Association

The Neurofibromatosis Association aims to fight neurofibromatosis (Nf) by:

• Acting as a mutual support group for parents and those affected by Nf, sharing problems and ideas,
• Linking those affected by Nf to each other in order to overcome the feeling of isolation they may experience
• Linking those affected by Nf with the medical profession to their mutual benefit,
• Providing information on Nf to patients, medical practitioners and others, so promoting awareness and understanding of the problems encountered in the disorder,
• Raising funds to support research into Nf and its problems,
• Organising seminars or symposia to study, discuss, and disseminate information and research findings on Nf,
• Maintaining liaison with like-minded organisations and medical professionals nationally and internationally